The reunion brings together a unique community of families who have shared similar struggles. Nearly all of the children in attendance were prenatally diagnosed with a birth defect, such asspina bifida,congenital diaphragmatic hernia, ortwin-twin transfusion syndrome, that had potentially devastating outcomes. Babies diagnosed with these birth defects before birth either underwentfetal surgeryto treat the condition before birth or received highly complex care immediately after birth.
“It is truly inspiring to see so many children, who as babies likely could have died, now running around and growing up healthy and strong,” said N. Scott Adzick, M.D., Surgeon-In-Chief at CHOP and Director of the CFDT. “The Fetal Family Reunion has always been my favorite day of the year, but it carries even more significance today to gather in-person together once again.”
CHOP’s Fetal Family Reunion has been an annual occurrence since 1997 and has grown from a handful of attendees the first year to more than 650 families today. CHOP’s CFDT is a pioneer in the field of fetal medicine and is one of only a few programs worldwide to offer comprehensive care, including prenatal diagnosis, fetal surgery and therapy, and the option of delivering at a leading pediatric hospital.
“Babies with special needs require highly specialized and experienced care, both before and after birth. The families gathered here today represent an important segment of the more than 28,000 expectant mothers, from all 50 states and over 70 countries, we’ve treated in our center,” said Julie S. Moldenhauer, M.D., Obstetrical Director of the CFDT and Medical Director of CHOP’s Garbose Family Special Delivery Unit. “The high volume of patients we see from around the world with incredibly complex, rare conditions makes all the difference in achieving favorable outcomes and allows us to offer hope and support to so many families.”
Each week at CHOP, surgical teams perform highly sophisticated procedures, such as spina bifida closure and interventions other birth defects in the womb, placing fetal shunts to treat life-threatening congenital conditions and performing minimally invasive procedures in the mother’s uterus to treat various complications. The team has also managed thousands of pregnancies complicated by birth defects in which newborns need immediate specialized medical care or surgery after delivery.
About Children’s Hospital of Philadelphia:A non-profit, charitable organization, Children’s Hospital of Philadelphia was founded in 1855 as the nation’s first pediatric hospital. Through its long-standing commitment to providing exceptional patient care, training new generations of pediatric healthcare professionals, and pioneering major research initiatives, the 595-bed hospital has fostered many discoveries that have benefited children worldwide. Its pediatric research program is among the largest in the country. The institution has a well-established history of providing advanced pediatric care close to home through itsCHOP Care Network, which includes more than 50 primary care practices, specialty care and surgical centers, urgent care centers, and community hospital alliances throughout Pennsylvania and New Jersey, as well as anew inpatient hospitalwith a dedicated pediatric emergency department in King of Prussia. In addition, its unique family-centered care and public service programs have brought Children’s Hospital of Philadelphia recognition as a leading advocate for children and adolescents. For more information, visithttp://www.chop.edu.
Media Contact:
Ashley Moore
215-630-4683
The Daily Caller News Foundation
SOURCE Children’s Hospital of Philadelphia
